The Toughest Times

The last time I shared an update, we were isolated in a hospital room for days due to Covid protocols. It was also Dan's birthday and we couldn't celebrate him as a family. The last few weeks were hard, possibly the hardest emotionally.

We completed 2 inpatient methotrexate treatments while being in isolation for each 4 night stay. That was challenging, physically and emotionally. He received a ton of care cards from all of you during the first visit. Thank you so much for putting a smile on this boy's face. The response was overwhelming!

Here is a picture of Jordan waving to Sami and Dan from his hospital room. This just broke my heart. You can see them on the corner standing outside of our truck.

Jordan's care team did their best to support him throughout. He had a few visits from Bob Casey, the hospital's psychologist, who has built a strong relationship with Jordan and helped navigate some new and reoccurring emotions. And upon our discharge on the last stay, his nurse Kenley surprised him with a gift card to the coffee shop in the lobby of the hospital so Jordan can buy more Vanilla Bean Chillers (they were one of those things that got him through the days...). Here is a picture of Jordan and Kenley just before we left the hospital.

A few days after being discharged, Jordan completed his last outpatient chemo treatment!!! Bye bye Doxorubicin! He also tested negative for Covid. Some MAJOR milestones were hit over the last couple of days. Only 2 more inpatient visits to go, and then Jordan will ring that bell so freaking loud! We are so close....

We also finally celebrated Dan's birthday as a family. It's never too late to celebrate.

Once chemo ends, the focus will shift to physical strength and healing so he can get fit for a prosthetic. We are starting to see the light...

Jordan is feeling ok, just a bit beat up from his recent chemo treatments. Over the next week, we will keep a close eye on his blood counts and overall health, with hopes of staying out of the hospital due to a fever or otherwise. His next scheduled admission is April 21 to start the last round of chemo therapy.

With so much love and light,

The CO Obies