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The Toughest Times
The last time I shared an update, we were isolated in a hospital room for days due to Covid protocols. It was also Dan's birthday and we...
Kari Obernesser
Apr 9, 20232 min read
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Covid
It's week 30. Another round of inpatient started yesterday. This is the 4th to last Methotrexate treatment and it's definitely testing...
Kari Obernesser
Mar 25, 20232 min read
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Mile 20
Although Jordan's heart is functioning at a healthy pace, his blood counts did not pass for his outpatient chemo treatment. His ANC...
Kari Obernesser
Mar 8, 20231 min read
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Back on track
Jordan's echo on Friday morning came back with a normal result. This means that his body continues to respond and recover well, when...
Daniel Obernesser
Feb 25, 20231 min read
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Physical Therapy
We are about to complete our 5th to LAST Methotrexate inpatient hospital visit, heading home today!! Only 4 more inpatient stays left,...
Kari Obernesser
Feb 21, 20232 min read
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We dippin' (as the kids say)
This post is a bit delayed, but sharing that Jordan is home. After 2 platelet transfusions and a pneumonia scare, he was able to leave...
Kari Obernesser
Feb 6, 20231 min read
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Still residents at Children's Hospital
We have been hopeful and patient, but unfortunately we are still in the hospital. I'll provide a brief synopsis as of the last post from...
Kari Obernesser
Jan 31, 20232 min read
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Blood Count Education (and an update)
As we expected, Cisplatin came in with a vengeance. We headed back into the hospital yesterday (Friday) afternoon with a fever and low...
Kari Obernesser
Jan 28, 20232 min read
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January
Happy New Year All! The holidays were mellow for us, as expected. Jordan was recovering from Cisplatin chemotherapy which impacted his...
Kari Obernesser
Jan 7, 20231 min read
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Inspiration Book Announcement
Our good friend, and mom of Jordan and Sami's good friends, is working on a inspirational book for Jordan. Although he has hit a huge...
Kari Obernesser
Dec 28, 20221 min read
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Keep on Pushing Through
Not only is Jordan healing well and navigating around like a Rockstar with one leg, he also learned that the chemotherapy is doing its...
Kari Obernesser
Dec 14, 20222 min read
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Our Hero
Jordan absolutely crushed his surgery today. Everything went according to plan, and he was awake, alert, and giving us his smile right...
Daniel Obernesser
Nov 28, 20221 min read
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Half way there
Jordan went into the OR around 8:30 this morning, and surgery began about 10:20 mountain time. We get frequent updates from the nurses,...
Daniel Obernesser
Nov 28, 20221 min read
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Love will carry us through
Hi everyone, To say tomorrow is a big day would be an insult to big days. It is huge, and our boy continues to carry us all through this....
Daniel Obernesser
Nov 27, 20221 min read
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Approaching a big milestone
We are finishing up two high doses of methotrexate. Next up... life changing surgery. Jordan has been cleared of the last treatment of...
Kari Obernesser
Nov 18, 20221 min read
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Jordan's Surgical Plan
Hi everyone, As we head into November (!!?), we want to update you all on Jordan's incredibly brave decision about his path to a normal...
Daniel Obernesser
Oct 31, 20223 min read
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Feeling the effects of Chemo
The Doxorubicin and Cisplatin chemo treatments from October 13-14 are showing their side effects. Jordan was discharged on Saturday,...
Kari Obernesser
Oct 24, 20222 min read
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An update for you!
We are in our final round of chemo for this 3 week cycle. It's been quite a challenging few weeks (hence the lack of updates here -...
Kari Obernesser
Oct 13, 20222 min read
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Homecoming...Not so much
We are unfortunately still in the hospital. Admitted on Friday morning with a optimistic plan of being discharged today (Monday). The...
Kari Obernesser
Oct 3, 20221 min read
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Week 5 here we come
We are learning the lifecycle of chemo. Jordan had a nice break as he body recovered from the last round. He felt good, eating well and...
Kari Obernesser
Oct 1, 20222 min read
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